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A patient-oriented perspective on porphyria. Psychosocial and health-related challenges of acute intermittent porphyria and porphyria cutanea tarda
(The University of Bergen, 2016-11-23)
Background: To optimize patient care, follow-up and genetic counselling of persons with acute intermittent porphyria (AIP) and porphyria cutanea tarda (PCT), investigations into the subjective experiences of persons living ...